Top 25 Rare Disease sites

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  1. thumbshots for orpha.net

    Orpha.net
    Orphanet

    The portal for rare diseases and orphan drugs
    http://orpha.net orpha.net Popularity:
  1. thumbshots for rarediseaseday.org

    Rarediseaseday.org
    Rare Disease Day ® 2018

    The main objective of Rare Disease Day 2018 is to raise awareness with policy makers and the public of rare diseases and of their impact on the lives of patients, and to reinforce their importance as ...
    http://rarediseaseday.org rarediseaseday.org Popularity:
  1. thumbshots for globalgenes.org

    Globalgenes.org
    Global Genes - Allies in Rare Disease And Genetic Disease, Genes, Undiagnosed Patients

    Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates and clinical partners. Our mission is to eliminate the...
    Site topics: rare disease / rare / hope
    http://globalgenes.org globalgenes.org Popularity:
  1. thumbshots for racefor7.com

    Racefor7.com
    Race For 7 | 7000 Rare Diseases | 7000 Meters

    ORDI team committed to address the challenges of rare disease patients and their families is conducting ‘Race for 7’, an awareness run in Bengaluru on
    Site topics: rare disease
    http://racefor7.com racefor7.com Popularity:
  1. thumbshots for rareconnect.org

    Rareconnect.org
    Connecting Rare Disease Patients Globally - Rareconnect

    RareConnect promotes global conversation and collaboration to improve the lives of rare disease patients and assist the organizations that serve them. RareConnect is an online social network for patie...
    Site topics: rare disease / disease / communities
    http://rareconnect.org rareconnect.org Popularity:
  1. thumbshots for eurordis.org

    Eurordis.org
    Eurordis - The Voice of Rare Disease Patients in Europe

    EURORDIS - Rare Diseases Europe, is a non- governmental patient- driven alliance of rare disease patient organisations representing 751 rare diseases patient organisations in 66 countries. We are dedi...
    http://eurordis.org eurordis.org Popularity:
  1. thumbshots for raredr.com

    Raredr.com
    Rare Disease Report

    Rare Disease Report is an independent voice for the rare disease community. We provide medical, business, regulatory, advocacy, and conference coverage related to orphan drugs and rare diseases. Our m...
    Site topics: rare disease / disease / orphan drugs
    http://raredr.com raredr.com Popularity:
  1. thumbshots for caregivingcafe.com

    Caregivingcafe.com
    Caregiving Cafe Home - Information, Resources, Support, Solutions

    Caregiving Cafe is a directory of links, information, resources, support, products, services, benefits, tips, stories and motivation to help caregivers.
    http://caregivingcafe.com caregivingcafe.com Popularity:
  1. thumbshots for centogene.com

    Centogene.com
    The Rare Disease Company - Genetic Testing For You And Your Patients: Centogene

    CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients lifes every day. Order your genetic test!
    Site topics: rare disease / ngs / biochemical
    http://centogene.com centogene.com Popularity:
  1. thumbshots for amiculum.biz

    Amiculum.biz
    Amiculum Home Page

    Site topics: rare disease / agencies / cancers
    http://amiculum.biz amiculum.biz Popularity:
  1. thumbshots for fmdsa.org

    Fmdsa.org
    Welcome to Fmdsa - Fibromuscular Dysplasia Society of America

    http://fmdsa.org fmdsa.org Popularity:
  1. thumbshots for checkorphan.org

    Checkorphan.org
    Checkorphan

    Site topics: rare disease / cell / eye
    http://checkorphan.org checkorphan.org Popularity:
  1. thumbshots for hopefulcircle.org

    Hopefulcircle.org
    Welcome to Hopefulcircle

    http://hopefulcircle.org hopefulcircle.org Popularity:
  1. thumbshots for teamerlich.org

    Teamerlich.org
    Erlich Lab

    Erlich lab at Whitehead Institute for Biomedical Research
    Site topics: rare disease / erlich / yaniv
    http://teamerlich.org teamerlich.org Popularity:
  1. thumbshots for hydrokids.org

    Hydrokids.org
    Pediatric Hydrocephalus Foundation

    http://hydrokids.org hydrokids.org Popularity:
  1. thumbshots for sireninteractive.com

    Sireninteractive.com
    Siren Interactive | Rare Disease Marketing Agency

    Siren Interactive is a rare disease marketing agency with a digital focus and unmatched expertise in understanding rare diseases, patients, and orphan drug development.
    Site topics: rare disease / rare diseases / siren
    http://sireninteractive.com sireninteractive.com Popularity:
  1. thumbshots for jp2mri.org

    Jp2mri.org
    John Paul ii Medical Research Institute

    JP2MRI is a non- profit medical research institute devoted to find cures for medical diseases for the use of ethical adult stem cells.
    http://jp2mri.org jp2mri.org Popularity:
  1. thumbshots for rarediseases.co.za

    Rarediseases.co.za
    Rare Diseases South Africa

    Rare Diseases South Africa a registered NPO organization which assists rare disease patients receive access to life- saving treatment and supportive care.
    Site topics: rare disease / rare diseases
    http://rarediseases.co.za rarediseases.co.za Popularity:
  1. thumbshots for hydrocephaluskids.org

    Hydrocephaluskids.org
    Pediatric Hydrocephalus Foundation

    http://hydrocephaluskids.org hydrocephaluskids.org Popularity:
  1. thumbshots for raredisease.org

    Raredisease.org
    — Home — Rare Disease Resources

    Support, resources and encouragement for people with rare diseases
    Site topics: rare disease / disease / communities
    http://raredisease.org raredisease.org Popularity:
  1. thumbshots for xpertdox.com

    Xpertdox.com
    Find Specialist Doctors And Hospitals For Rare Diseases | Xpertdox, Llc

    Find an expert doctor or hospital for any rare disease. We analyzed 55 billion data points before providing you with a personalized 360 degree evaluation of a doctor.
    http://xpertdox.com xpertdox.com Popularity:
  1. thumbshots for researchtrends.com

    Researchtrends.com
    Research Trends

    http://researchtrends.com researchtrends.com Popularity:
  1. thumbshots for madisonsfoundation.org

    Madisonsfoundation.org
    Madisons Foundation

    Madisons Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life- threatening diseases, and to facilitating effective communicatio...
    Site topics: rare disease / disease / rare
    http://madisonsfoundation.org madisonsfoundation.org Popularity:
  1. thumbshots for premier-research.com

    Premier-research.com
    Premier Research

    At Premier Research we help biopharmaceutical and medical device companies bring their developments from strategy through clinical development to market.
    http://premier-research.com premier-research.com Popularity:
  1. thumbshots for educatedaging.com

    Educatedaging.com
    Health And Aging Insights Blog The Aging Experience

    Read our blog which features insights into aging issues for seniors and caregivers. Stay up to date and educated with the latest research and news in the world of aging.
    Site topics: rare disease / hearing / caregiving
    http://educatedaging.com educatedaging.com Popularity: